Pyruvate Kinase Deficiency (PKD) Rare360 Perspectives, Insights & Experiences (P.I.E)

Pyruvate Kinase Deficiency (PKD) Rare360 Perspectives, Insights & Experiences (P.I.E)

Subscribe to the Rare360 P.I.E. program to get counted!
The goal is to identify the global prevalence of PKD to better understand the impact of this rare disease and the needs of the PKD community.

Have any questions? Please email us at admin@rare360.life.
Choose all of the following options that best describe you:*

I am a person diagnosed with PKDI am suspected of having PKDI care for someone diagnosed with PKDI care for someone suspected of having PKDI am a friend and ally of the PKD CommunityNone of the above
How long ago were you diagnosed with PKD?*

Within the past 6 months7-24 months ago3-5 years ago6-10 years ago10+ years ago
How long ago was your loved one diagnosed with PKD?*

Within the past 6 months7-24 months ago3-5 years ago6-10 years ago10+ years ago
Please select the age group that fits your current age*

Under 1818-2526-3536-4546-5556-6565+Prefer not to say
What was your biological classification at birth?*

FemaleMaleOther (e.g., intersex)Prefer not to answer
What is your racial classification? Select ALL that apply*

Native AmericanAsianBlackWhiteDon’t know/Not surePrefer not to answer
What is your ethnicity? Select ALL that apply.*

Hispanic or LatinoNon-Hispanic Caribbean AmericanAfrican AmericanAlaska NativeNative Hawaiian or other Pacific IslanderAsian AmericanCajunCaucasianMiddle EasternDon’t know/Not surePrefer not to answer
Which category BEST describes the highest level of education that you have acquired? Select ONE answer*

No schooling completedGrade school (e.g., completed up to Grade 8)Some high school, no high school degreeHigh school graduate or GEDProfessional Trade Certification, no college degreeSome college, no college degreeAssociate degree (e.g., AA, AS, etc.)Bachelor’s degree (e.g., BA, BS, etc.)Some post-graduate studies, no post-graduate degreeMaster’s degree and/or Doctoral degreePrefer not to answer
Do you consent to be contacted by Rare360, powered by the Rare Advocacy Movement (RAM)?*

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Name*

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